Comments on In the Waiting Room: Different Dream Parenting

Chelsey, Thank you for sharing about Irelynn. She ...

2012-01-21T18:15:00.168-06:00

Chelsey, Thank you for sharing about Irelynn. She sounds like she is a strong and very brave little girl. No wonder you call her your miracle!

I wanted to let you know that you are the winner of Jolene's book. Please email me at lockshock007@gmail.com with your address so I can get it in the mail to you.

God bless your family! I will pray for Irelynn as she faces these upcoming surgeries.

Connie

I'm Connie's younger sister and a aunt wit...

2012-01-09T15:50:01.579-06:00

I'm Connie's younger sister and a aunt with special needs nephew. Watching Connie and Mark through the years with their struggles with all those surgeries and not knowing what was going to happen next, I was scared all the times JM had surgeries, I was there for many of them, not only to be there for JM but for my wonderful sister Connie, I couldn't imagine how hard it is on her and JM is her whole life, she and Mark are awesome parents with a wonderful son and daughter. When I'm around them I am amazed at how hard it is to take care of JM's needs all day long, God knows that JM has the best parents ever! ... I love you Connie, you are an inspiration to me and other families you help ... xoxo

Hi, my name is Chelsey and I have a 4 yr old daugh...

2012-01-09T11:08:08.860-06:00

Hi, my name is Chelsey and I have a 4 yr old daughter named Irelynn, who has VCFS/DiGeorge Syndrome. She has been sick since birth but wasn't diagnosed until Feb. 2010. She was born with a fever that was overlooked, at 2 weeks old she was in ICU with a kidney infection and sepsis, at 5 months of age she began to have seizures, at 6 months old she was diagnosed with complex-partial epilepsy and kidney reflux on both sides, she didn't walk until she was almost 2 and wears braces on her legs, and she can't talk very well, she has to use a communication device and sign language along with speech, she has to have monthly IVIG for her immune system and has had 8 surgeries, which she's due for 2 more very soon. Life has been difficult but she is perfect to me and I can't imagine her being any other way because she is such a wonderful angel and blessing in my life. I look at her constantly and wonder how her little body stays so strong and how she does it... She has been through more than most adults and acts like it's no big deal! She is my miracle!